PEGS Data Freezes
The PEGS data are stored securely in a single centralized, shared repository to ensure consistent, reproducible, and comparable analyses. PEGS comprises a compatible, multi-dimensional collection of datasets in consistent and programmatically extractable formats, as shown in the figure on the right, and Data Components below. PEGS data are updated on a quarterly basis with additional participants, new variables, participant updates, and any additional data components. We are continually building analysis pipelines and workflows to enable efficient, reproducible, insightful, and collaborative research using the PEGS data.
Data components available to researchers from the PEGS cohort are listed with their description and sample size (the number of participants). The latest versions of the administered participant surveys are also provided.
|Component||Description||Documents||Number of Participants|
|Demographic and Administrative Data||Demographics, consent, address and administrative data for all participants||19,672|
|Health & Exposure Survey||Demographics, health, family history of disease, environmental exposures, socioeconomic status and lifestyle||Health & Exposure Survey (338KB)||9,414|
|External Exposome Survey (Exposome A)||Residential and occupational environmental exposures||External Exposome Survey (27MB)||3,519|
|Internal Exposome Survey (Exposome B)||Medication use, physical activity, stress, sleep, diet, genetics and reproductive history||Internal Exposome Survey (13MB)||2,962|
|Diabetes Screener Survey||Diabetes screener administered to participants with self-reported diabetes||Diabetes Screener Survey (69KB)||204|
|Eczema Screener Survey||Eczema screener administered to participants with self-reported eczema||Eczema Screener Survey (92KB)||302|
|Right-not-to-know Main Survey||Right-not-to-know Survey administered for incidental findings reports||231|
|Right-not-to-know Cognitive Interview Survey||Right-not-to-know Cognitive Interview administered to assess awareness of incidental findings reports||Right-not-to-know Cognitive Interview Survey (1MB)||12|
|ICD Data||Disease, phenotype and diagnostic ICD9/10 codes from electronic medical records||TBD|
|Electronic Health Records (EHRs) and Electronic Medical Records (EMRs)||Structured collection of digitally stored patient health information containing demographics, medical history, medication and allergies, immunization status, laboratory test results, radiology images, vital signs, personal statistics such as age and weight and ICD9/10 billing codes||TBD|
|Geographic Information Systems (GIS) Data||Geocoded participant addresses from five study events with mapping coordinates, distance to toxic release and agricultural operation sites and geospatial exposure estimates computed from various GIS exposure databases||9,765|
|Whole Genome Sequencing (WGS) Data||WGS data for PEGS participants||4,737|
|Candidate Gene/SNP Data||Candidate SNP data for a subset of participants for specific research goals||12,316|
Categories of survey questions administered to the participants in the Health & Exposure Survey are provided.
|Health & Exposure Survey|
|About Your Family's Health||Diabetes and Endocrine||Neurologic|
|About Your General Health||Digestive||Occupation|
|About Your Home Life||Exposures||Renal|
|About Your Mood||Fatigue||Reproductive (Females Only)|
|Bones, Joints, and Muscles||Hematological||Reproductive (Males Only)|
|Cardiovascular||Lifestyle||Skin, Eyes, and Hair|
Categories of survey questions administered to the participants in the External Exposome Survey (Exposome Survey - Part A) are provided.
|External Exposome (Exposome A)|
|Characteristics of Current and Past Residences:
• Agricultural Property Use
• Garage and Basement
• Heating and Cooling
• Pesticides and Insecticides
• Surrounding Area
• Walls and Flooring
• Water and Dampness
|Chemical and Metal Exposures at Work|
|Ultraviolet Light Exposures|
Categories of survey questions administered to the participants in the Internal Exposome Survey (Exposome Survey - Part B) are provided.
|Internal Exposome (Exposome B)|
|Chemotherapy/Radiation Therapy||Physical Activity|
|Dietary Behavior||Reproductive History (Females Only)|
|Infectious Disease||Vitamins, Minerals, and Other Supplement Use|
|Medications||Twin/Triplet Siblings and Birth Order|
All data on this website are reported from PEGS Data Freeze 1.1 created on 7/26/2021.