Global Approaches To Improved Treatments And Understanding Of Myositis
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Announcement for IMACS Group MembersGlobal Genes, a global rare disease patient advocacy organization, has announced their selection of nine individuals and organizations from around the world as the 2019 award recipients of the Global Genes RARE Champion of Hope Awards, a program recognizing innovation in research and advocacy in rare diseases. The International Myositis Assessment and Clinical Studies Group was named the recipient of the RARE Champion of Hope – Collaboration in Research award. The 2019 award recipients will be honored following the 8th Annual RARE Patient Advocacy Summit on Friday, September 20 at the Sheraton San Diego Hotel & Marina in California. Drs. Lisa Rider and Frederick Miller, the IMACS Coordinators from the National Institute of Environmental Health Sciences, National Institutes of Health, will be in attendance to receive the award on behalf of IMACS. Other award recipients of the 2019 RARE Champion of Hope Awards may be found online. Congratulations to all IMACS members on this well-deserved group recognition for our 19 years of work together towards bettering the lives of all myositis patients!
The International Myositis Assessment and Clinical Studies Group (IMACS) is a coalition of health care providers and researchers with experience and interest in the myositis syndromes.
The goals of IMACS are to improve the lives of children and adults who suffer from myositis by discovering better therapies through understanding the causes of these diseases.
IMACS members work to achieve these goals by developing consensus and standards on the conduct and reporting of adult and juvenile myositis studies, performing collaborative therapeutic trials and by planning, facilitating and conducting international collaborative myositis research.
The administrative arm of IMACS is housed in offices of the National Institute of Environmental Health Sciences (NIEHS) in the Mark O. Hatfield Clinical Research Center at the National Institutes of Health, Bethesda, MD, USA. This facility is the world's largest clinical research complex, serving a dual role: providing humane and healing patient care as well as the environment clinical researchers need to advance clinical science.
The Clinical Center complex is part of the NIH's intramural science research program. NIH is part of the U.S. Department of Health and Human Services and the medical research agency of the U.S Government.
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