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Global Genes RARE Champion of Hope Awards


Global Genes, a global rare disease patient advocacy organization, has announced their selection of nine individuals and organizations from around the world as the 2019 award recipients of the RARE Champion of Hope Awards, a program recognizing innovation in research and advocacy in rare diseases. The International Myositis Assessment and Clinical Studies Group was named the recipient of the RARE Champion of Hope – Collaboration in Research award. The 2019 award recipients were honored following the 8th Annual RARE Patient Advocacy Summit on Friday, September 20, 2019 at the Sheraton San Diego Hotel and Marina in California. Lisa Rider, M.D., and Frederick Miller, M.D., the IMACS Coordinators from the National Institute of Environmental Health Sciences, National Institutes of Health, were in attendance to receive the award on behalf of IMACS. Other award recipients of the 2019 RARE Champion of Hope Awards may be found online. Congratulations to all IMACS members on this well-deserved group recognition for our 19 years of work together towards bettering the lives of all myositis patients!

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