IMACS is developing a Clinical Trial/Study Outcomes Data Repository. This repository, which is being supported in part by a grant from the American College of Rheumatology, will capture IMACS core activity, damage and patient-reported outcome measures and related trial/study information. The data from multiple studies will be used to prospectively validate the Preliminary Definitions of Improvement as Myositis Response Criteria. The data repository will also be open to IMACS investigators with IRB/ethics-approved protocols for other studies. Please contact the IMACS coordinators for further information.
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