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Your Environment. Your Health.

NIEHS EPR Policy for Genotyping Data Sharing

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  1. All requests for genotyping, samples, data, and other EPR resources will be electronically submitted to the EPR Steering Committee for comment. 
  2. The EPR Steering Committee is composed of
    • EPR Principal Investigator and Acting CRU Medical Director – Shepherd H. Schurman
    • Acting Clinical Director – Stavros Garantziotis
    • Chief of the Environmental Autoimmunity Group – Fred Miller
    • Staff Scientist, Laboratory of Molecular Genetics – Nell Burch
    • PI, Molecular & Genetic Epidemiology Group – Jack Taylor
    • PI, Post-Transcriptional Gene Expression Group – Perry Blackshear
    • Subject Matter experts – as needed for specific requests

Policy for Sharing Genotyping Results

  1. A list of all the genes that have been genotyped will be put on the EPR website.  Researchers will be referred to EPR Director for questions about data from specific genes and SNP and other inquiries.
  2. If genotyping was performed centrally through DIR funds (i.e. without impacting the investigator’s laboratory budget), investigators will receive their genotyping data after it has been cleaned and validated. Simultaneously, investigators will also receive notice of the following:
    1. The data will remain proprietary for 1 year after they receive it, but researchers can request an extension of their 1-year proprietary period for another year with adequate justification and approval by the EPR Steering Committee;
    2. If during the proprietary period another researcher contacts the EPR Director and requests information or data on specific genes and SNPs, the EPR Director will provide them with the original researcher's name and contact information to see if a collaboration may be possible. At the end of the proprietary period, genotyping data will be shared with other researchers upon request after approval by the EPR Steering Committee and completion of the data transfer agreement.
  3. If genotyping was performed through the investigator’s own funds (e.g. by an extramural or other fee-for-service operator), then the investigator will be required to share genotyping results with the EPR Director after 24 months.
    1. After the 2-year proprietary period, genotyping data will be shared with other researchers upon request after approval by the EPR Steering Committee and completion of the data transfer agreement.
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