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Your Environment. Your Health.

Multi-center Long-term Outcome of Juvenile Dermatomyositis

Principal Investigator:

Dr. Angelo Ravelli, Italy

 

Study Design:

Retrospective, cross sectional

 

Types & Number of IIM Studied:

Juvenile Dermatomyositis, Juvenile Polymyositis (N = 300)

 

Entry Criteria:

 

IMACS Core Set Measures Included:

All - Physician and Parent Global Activity and Damage Assessments, Manual Muscle Testing, Childhood Myositis Assessment Scale, [Childhood] Health Assessment Questionnaire, muscle enzymes, Myositis Disease Activity Assessment Tool; Myositis Damage Index, Health related Quality of Life by SF-36 and Child Health Questionnaire

 

Other Measures Included:

Disease Activity Score, natural history, treatment, muscle biopsy, educational/ vocational achievement, illness outcome satisfaction

 

Primary Outcome:

Remission vs. persistently active disease, Organ damage, Quality of Life

 

Study Duration:

2 years

 

Comments:

Study has completed enrollment

 

Contact:

Angelo Ravelli
Genova, Italy
Tel +39-010-5636386
angeloravelli@ospedale-gaslini.ge.it

 

 

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