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Your Environment. Your Health.

Multi-center Long-term Outcome of Juvenile Dermatomyositis

Principal Investigator:

Dr. Angelo Ravelli, Italy


Study Design:

Retrospective, cross sectional


Types & Number of IIM Studied:

Juvenile Dermatomyositis, Juvenile Polymyositis (N = 300)


Entry Criteria:


IMACS Core Set Measures Included:

All - Physician and Parent Global Activity and Damage Assessments, Manual Muscle Testing, Childhood Myositis Assessment Scale, [Childhood] Health Assessment Questionnaire, muscle enzymes, Myositis Disease Activity Assessment Tool; Myositis Damage Index, Health related Quality of Life by SF-36 and Child Health Questionnaire


Other Measures Included:

Disease Activity Score, natural history, treatment, muscle biopsy, educational/ vocational achievement, illness outcome satisfaction


Primary Outcome:

Remission vs. persistently active disease, Organ damage, Quality of Life


Study Duration:

2 years



Study has completed enrollment



Angelo Ravelli
Genova, Italy
Tel +39-010-5636386



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