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Short-, medium- and long-term outcome in patients with Idiopathic Inflammatory Myopathy

Principal Investigator:

Katalin Danko, Andrea Ponyi, Debrecen, Tamas Constantin, Budapest, Hungary

 

Study Design:

Natural History (Survival and Clinical Course) and Functional Outcome Retrospective, Cross-sectional and Prospective Study

 

Types & Number of IIM Studied:

Polymyositis, Dermatomyositis, Overlap myositis, Juvenile dermatomyositis, cancer-associated myositis (N = 105)

 

Entry Criteria:

Probable or definite Bohan and Peter criteria for idiopathic inflammatory myopathy

 

IMACS Core Set Measures Included:

Physician and Patient Global Activity Assessment, Manual Muscle Testing, Childhood Myositis Assessment Scale, Health Assessment Questionnaire, Enzymes, Myositis Disease Activity Assessment Tool; Myositis Damage Index, Health Related Quality of Life by SF-36 and Child Health Questionnaire

 

Other Measures Included:

MHC-typing, Myositis specific autoantibodies, Extra-muscular involvement, Work status, Development of other illnesses, Development of therapy- and disease-related complications

 

Primary Outcome:

Death, Relapses; IMACS Definitions of Improvement

 

Study Duration:

Retrospective and Cross-sectional Study: Completed (2003) Prospective Study: Ongoing and Open (2003-2008)

 

Funding:

Hungarian Scientific Foundation (T046931), Hungarian Health Council (11 CO 24/0004 3/20)

 

Contact:

Katalin Danko, Ph.D.
danko@iiibel.dote.hu
Andrea Ponyi, Ph.D.
Tel +36-52-414-969
ponyi@iiibel.dote.hu
Tamas Constantin, Ph.D.
Tel +36-1-215-1380
ctamas@gyer2.sote.hu

 

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